✨ Welcome to the second part of the Medtalks webinar series – a session full of insights on patient-facing documents, linguistic validation, and truly listening to the patient voice. Due to a little technical hiccup, the very beginning of the talk didn’t make it into the recording – but don’t worry, the remaining 50 minutes are packed with engaging content.

🔹 What you’ll hear in this webinar:

Mark and Nur are talking about why information design principles are often overlooked in patient-facing documents, and how their “nine circles of cognitive burden” model sheds light on patient struggles.

My conversation with Karin Rijff on the challenges of linguistic validation and cultural adaptation, why native speakers matter, and why patient co-design is essential.

Eva Nyblom and Arletta Różańska sharing their practical approaches to cognitive debriefing, patient recruitment, and interview methodologies, with tips on how to really capture what patients understand (and what they don’t).

💡 A common thread throughout: how to achieve better patient voice results – not just checking a box, but making sure patients are genuinely heard.

👉 Let us know in the comments: How do you bring the patient voice into your own work?

0:00 – 0:13 → Core Principles of Patient-Facing Documents

GRC highlights why information design is often overlooked, the impact of jargon, and visual readability issues.

0:13 – 0:17 → Cognitive Burden and Patient Experience

The “nine circles of cognitive burden” model illustrates the multiple layers of difficulty patients face when reading documents.

0:17 – 0:31 → Challenges in Pharma Engagement and Tokenism

Discussion on patients not reading complex documents and the importance of genuine patient voice versus tokenism.

0:31 – 0:51 → Linguistic Validation and Cultural Adaptation

Importance of native speakers, culturally sensitive translations, and patient co-design to ensure true patient-centricity.

0:51 – 1:10 → Cognitive Debriefing and Interview Methodology

Practical approaches to patient recruitment, interview techniques, observing comprehension, and capturing meaningful feedback.